project alive

Project Alive was named the first benefactor of CHARITYBEATS inaugural benefit concert in 2020.  Proceeds from this concert were donated to Project Alive to support their mission, which is to cure Hunter Syndrome / Mucopolysaccharidosis II through research and advocacy.

Project Alive is a powerful voice for children and adults with Hunter Syndrome, bringing together families and advocates with researchers, industry, and regulators. Project Alive funds promising curative research, assists researchers and industry with designing research studies for their community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. Through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter Syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.